Venue: Nevanlinna lecture hall of the Finnish Red Cross, Kivihaantie 7, 00310 Helsinki, Finland

Thursday 7 February

12:15-12:45 Registration, Coffee, Exhibition

12:45 Introduction, Markku Partinen

12:50 Opening, Ministerial Counsellor Timo Keistinen, Ministry of Social Affairs and Health

 

Part 1. Clinical aspects of narcolepsy

Chairperson Tomas Olsson, Stockholm

 

13:00             Are the estimated prevalences of narcolepsy in different ethnic groups too low or too high?                 Christer Hublin, Helsinki

13:15             Clinical picture, diagnosis and evolution of childhood narcolepsy, Giuseppe Plazzi, Bologna

14:00             Can knowledge about the hypocretin neuronal system help explain the post vaccination                       deficiency? Kaare Gautvik, Oslo

14:15             Role of CSF-hypocretin in differential diagnosis of narcolepsy, Stine Knudsen, Copenhagen

14:30             Management and treatment of childhood narcolepsy – Swedish experience,

                      Lars Palm, Lund/ Malmö

14:50             Problems in diagnosis. Brighton criteria and developments of the new International

                      diagnostic criteria of narcolepsy. Markku Partinen, Helsinki

15:05             General discussion

15:20             COFFEE BREAK, EXHIBITION

 

Part 2. Psycho-social aspects of narcolepsy

Chairperson Mona Heier, Oslo

 

15:45             Social- and school problems in childhood narcolepsy, Outi Saarenpää-Heikkilä, Tampere                 

16:05             Severe psychiatric problems in childhood narcolepsy, Reija Alén, Jyväskylä

16:20             Burden of narcolepsy. Social consequences and costs, Poul Jennum, Copenhagen

16:40             Compensations of pharmaceutical related injuries in the Nordic countries, Reima Palonen,                  Helsinki

17:00             General discussion

17:30             End of the First day

18:30             Dinner

 

Part 3. H1N1 epidemics, pandemic H1N1 vaccinations and narcolepsy

Chairperson Terhi Kilpi, Helsinki

 

8:30               H1N1-vaccinations and narcolepsy in Sweden, Nils Feltelius, Uppsala

8:50               H1N1-vaccinations and narcolepsy in Norway, Mona Heier, Oslo

9:10               H1N1-vaccinations and narcolepsy in Finland, Hanna Nohynek, Helsinki

9:30               Discussion

9:45               COFFEE BREAK

 

 

Part 4. Neurobiology and pathogenetics of narcolepsy

Chairperson Antti Vaheri, Helsinki

 

10:05   Immunogenetics of organ-spesific inflammatory disease, experience from Multiple Sclerosis, Tomas Olsson, Stockholm              

10:25   Genetic support for the autoimmune hypothesis of narcolepsy, Birgitte Kornum, Copenhagen

10:50             (Gen)Omical possibilities and challenges for studies in narcolepsy, Markus Perola, Helsinki

11:05             Viral infections and narcolepsy, Ilkka Julkunen, Helsinki

11:20             Antibodies against pandemic H1N1-vaccines, Outi Vaarala, Helsinki

11:40   Immunohistochemical studies on sera from patients with narcolepsy, Peter Bergman, Czaba Adori and Tomas Hökfelt, Stockholm

12:00             Experimental challenges of HLA-DQ6 transgenic mice, Tobias Freitag, Helsinki

12:20             Discussion

12:35             LUNCH

 

Part 5. Current and future topics. Free communications

Chairperson Markku Partinen, Helsinki

 

13:15             Virological and microbiological studies, Olli Vapalahti, Helsinki

13:22             Autosomal dominant cerebellar ataxia, deafness and narcolepsy, Atle Melberg, Uppsala

13:29             Identification of potential mimotopes, Kaia Palm, Tallinn

13:36             Neural antibodies, Seppo Meri, Helsinki

13:43             CSF-hypocretin, and other CSF-measurements in Finnish narcolepsy patients, Pekka Kaipainen, Espoo

14:00             HLA and narcolepsy- other than DQA1-DQB1, Taina Jaatinen, Helsinki

14:07             Discussion

14:30             COFFEE BREAK

 

14:45             Clinical and epidemiological studies in Sweden, Tove Hallböök, Gothenburg

14:52             Organisation of studies and treatment of narcolepsy in Norway, Michaela Gjerstad,      Trondheim

14:59             Differences between Finnish and Italian children with narcolepsy, Fabio Pizza, Italy and                      Tomi Sarkanen and Hanna Peltola, Finland

15:06             Adults with narcolepsy after Pandemrix in Sweden, Lena Leissner, Örebro

15:13             Free communications, TBA

15:27             Discussion

16:00             End

 

Suggested hotel lodging: Hotel Haaga Best Western (500 metres from the congress place on the other side of Hämeenlinnantie in the Finnish Red Cross (SPR headquarters). Reference “narcolepsy” for a reduced price; reservations by email: sales@haaga.fi or by phone (see Internet)

 

REGISTRATION by email to: anne.huutoniemi@vitalmed.fi

 

Registration fees: One day 80 €, both days 120 €. Dinner 35 €. To be paid to Helsingin uniklinikka, account IBAN: FI3566010001060995, AABAFI22. Reference: NarpaSymp.

 

Information:

Anne Huutoniemi: anne.huutoniemi@vitalmed.fi, phone +358 10 2311481.

Other information about topics for free communications and themes for discussion:

Markku Partinen: markku.partinen@helsinki.fi, phone +358 10 2311481.

 

Organisers: The NARPANord Consortium (Academy of Finland and Vetenskapsrådet); Helsinki Sleep Clinic, Vitalmed Research Centre; University of Helsinki

 

Local Organisation Committee: Anne Huutoniemi, Taina Jaatinen, Markku Partinen

 

Nordic Scientific Committee: Mona Heier, Tomas Hökfelt, Poul Jennum, Ilkka Julkunen, Seppo Meri, Tomas Olsson, Markku Partinen, Outi Saarenpää-Heikkilä, Antti Vaheri, Olli Vapalahti

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